An article on nwitimes.com is a heart-tugging story about a parents’ fight for their infant’s right to live a normal life. Seth Petreikis is less than 6 months old. And at just 2 ½ weeks old, Seth underwent a successful heart surgery. However, it was later that he was diagnosed with a rare and fatal condition called Complete DiGeorge Syndrome. To put it plainly, Seth’s body is no longer able to fight off infections or viruses. As a result, the only way he can be touched or held, is if people where masks and gloves.
The good news is that Complete DiGeorge Syndrome can be treated. Seth would have to live with shunts in his heart his whole life, but at least he would not live in a hospital. He would be able to play as an average everyday boy.
But the problem is that the treatment is an experimental procedure. Furthermore, it is not covered by Seth’s parents Medicaid. And it can only be performed by one doctor in one hospital in the country. Without the help of insurance, this surgery would cost an estimated $500,000.
Now the parents are looking for help from Gov. Mitch Daniels of Indiana. Daniels’ spokeswoman, Jane Jankowski said that the case will go under “review.” Come on! There is a boy’s life hanging in the balance here; and the sad part is, Seth does not have the luxury of time. He needs this experimental procedure done right now! The Governor of Indiana needs to step up and use his position in office for the benefit of possibly saving a child’s life.
In my opinion, anyone who is trying to fight for their life, and an experimental procedure is the only way to increase their chances, then no insurance, no financial instability, no state should be able to stop them. The Petreikis family just wants their boy to be healthy. And it is absolutely wrong that the state Medicaid is denying them of that right to pursue their happiness.
Obviously these experimental surgeries need people to experiment on. So why not the people whose lives could be positively changed, and who actually want to do the procedure. In the words of Seth’s mother Becky, "We're not fighting for a life in a hospital, we're fighting for a normal life." If anyone else feels that Seth is being wrongly denied by Medicaid, and the state’s Family and Social Services Administration, then write to the Gov. Daniels of Indiana. Email, write letters, use Twitter and all social medias to evoke change for Seth. In addition, anyone can donate to help Seth’s parents pay for the procedure. Being able to afford this experimental procedure would be the ultimate gift to Seth’s parents on Christmas day!
http://www.nwitimes.com/news/local/lake/dyer/article_7a7a152f-3230-512c-8e6b-881082fc1221.html